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Petition by Geraldine MacDonald  
Closed Petitions - Petition PE1299  
Petition by Geraldine MacDonald calling on the Scottish Parliament to urge the Scottish Government to set national standards of care for all Myoclonic Dystonia sufferers and issue guidance to local authority social work/housing departments to ensure they provide adapted service provisions and environmental adaptations to the sufferers based on a fair assessment of their condition.  
Petitioner: Geraldine MacDonald  
Number of signatures: 20  
Date lodged: 4 December 2009  
SPICe Briefing: Briefing for PE1299 

Written Submissions for PE1299  

Written Questions for PE1299  

15 December 2009 :   The Committee agreed to write to the Scottish Government, a selection of local authorities (Argyll & Bute, North Lanarkshire and Falkirk), the Dystonia Society, NICE, Association of Directors of Social Work and the Social Work Inspection Agency seeking responses to the points raised in the petition and during the discussion. <Link to Official Report 15 December 2009 

15 March 2010 :   The Committee agreed to write to the Scottish Government seeking a response to specific points. <Link to Official Report 15 March 2010 

15 June 2010 :   The Committee agreed to write to the Scottish Government seeking a response to specific points. <Link to Official Report 15 June 2010 

26 October 2010 :   The Committee agreed to postpone the petition until all NHS boards have implemented NHS QIS clinical standards for neurological health services and to seek an update from the Scottish Government, once the implementation has been completed, on the benefits the standards have brought to Myclonic Dystonia sufferers and medical practitioners.  

8 February 2011 :   The Committee agreed to close the petition under Rule 15.7 of Standing Orders on the grounds that the Neurological Implementation and Improvement Support Plan launched by NHS QIS in January 2010 is a 2-year programme aimed at establishing neurology Managed Clinical Networks to be the main vehicle for local improvement of neurological services. Further, the latest letter from the Scottish Government states that this matter is closely monitored by NHS QIS and that NHS boards have already identified "the local priorities for improvement" all of which are relevant to people living with Myoclonic Dystonia. <Link to Official Report 8 February 2011 

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